Sunday, November 7, 2010

My pledge as your friend. . .




1. When you are sad ~ I will help you get drunk and plot revenge against the sorry bastard who made you sad.
2. When you are blue ~ I will try to dislodge whatever is choking you.
3. When you smile ~ I will know you are thinking of something that I would probably want to be involved in.
4. When you are scared ~ I will rag on you about it every chance I get until you're NOT.
5. When you are worried ~ I will tell you horrible stories about how much worse it could be until you quit whining.
6. When you are confused ~ I will try to use only little words.
7. When you are sick ~ Stay the fuck away from me until you are well again. I don't want whatever you have.
8. When you fall ~ I will laugh at your clumsy ass, but I'll help you up.
9. This is my oath .... I pledge it to the end.

Why- you may ask??
~ because you are my friend.

Saturday, November 6, 2010

Weekend at Bernies - or my Vegas trip with #2

Anyone who’s seen Weekend at Bernie’s, this just about sums up my weekend in Vegas.

Yes – I felt like Bernie

Lets start at the beginning. Hoover Dam. I was last there as a kid. Despite being in Vegas every summer of my childhood, I can’t recall ever going. I can Gar-an-damn-tee you that my parents would not likely invest the .50¢ it probably cost back then to do the tour. As an adult I always wanted to go but my ex thought it dull, besides, it would take precious time away from the tables, free drinks and the gray haze of casino cigarette smoke.

So #2 & his BF helped me realize an item on my bucket list. Sadly. Now, due to my AICD, I can’t go below! SHIT!

So we walked across & it is truly an amazing experience. Very humbling to think of how they built this HUGE dam & the concrete is still curing! Its 600 feet thick at the bottom and just 43 feet thick at the top. Of course #2 & BF were more interested in the 5-man german bike team walking around in lyrca shorts looking like there smuggling plums in their shorts.

So onward to Vegas - but I had a surprise for #2. Because hotels never allow you to check in at a convenient time, I made arrangements for him to do Indoor Skydiving. He had a blast & actually did very well. So off to the hotel we go. Remember that $49.00 rate I got? Well, they tried to charge me $349. for #2's room. After a bit of arguing we settled on $79. for his room and he still got $60. slot credit, and a fantasy room so I thought it fair.

Due to his drinking and short attention span, the only casino games he latched onto was Roulette and both him & BF had fun & did OK. We took in Downtown one afternoon and they were not too impressed. Later we did Dick’s Last Resort for dinner. It was fun & the food was surprising good. They force patron to wear homemade hats with sayings like “I shaved my balls for this?” or “Dr. Phil makes me moist” Not exactly family entertainment, but we had fun!

http://www.youtube.com/watch?v=X1UjPYmWTdA&NR=1

Some observation –
City Centre is way too big. Very difficult to navigate. Also – I’m really getting sick of porn-slappers. I’m beginning to think they are specifically breeding them – You know, those short Guatemalans that slap the business card before they force it upon you at all the major corners in Vegas. I used to think they were all retired jockeys who didn’t make their weight class then said to hell with it & came to Vegas. Can you imagine what their employment review are like? “I’m sorry Hector, your slapping is not forceful & your not getting into everyone way enough to be effective, turn in your ill-fitting tee-shirt.”

All in all a good time, but I felt a bit out of place most of the time – A bit like Bernie.

Sunday, October 17, 2010

Suprise at Mayo Clinic

https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh96gXQHIa9f0QHAq011jPI_t9qfbMcZ98HdupogvxgI_SmeQgXJ_Tfs6vDnNB7dlTNZ0kZccB6iYSWSIApyqp2qb5MQGJ4NHaoVLZtU1QDDUfoFxSXvhG_laAqeR9IZNsJYP8L4hzVvXU/s1600/bc+06a.jpg

While I was at the Mayo Clinic doing my heart evaluation, I agreed to meet meet up with an HCM'r and her niece. Since they did not have any email access & I didn't want to give out my cell phone, we agreed the previous week to meet at the Grand Piano @ 5:00 on Thursday.
If your not aware, the Mayo really several tall buildings, each added in a different decade. Tying the latest additions is a beautiful light filled atrium that rises 3-4 stories and is windows on one side and elevators on the back side. They have several Grand Pianos throughout the facility and the main one is in this lobby area & its not uncommon to have someone sit down & play. They also hire someone who plays standards & all the old folk gather around & sing along.
Anyways - Being 5 o'clock, the building was emptying out & doctors, nurses, and researchers were leaving. I sat down & waited for my new friend to show up. Her niece walked up to me and introduced herself and said that Mary would be a while longer. We talked & learned a bit more about each other and this large burly guy in green scrubs walks up and asks if he can play - SURE! Please do! we both said, and he played very well indeed. His first piece was Moonlight Sonata and as he was playing the second number, I glanced over and happened to notice that his scrubs were riding low and the back of his top was cresting his muffin-top. And there it was - A purple thong!
I guess my expression got the most of me as the niece noticed my eyes bugging out or some other clue that prevents me from becoming a professional poker player. She did a quick 180 and notice the same visual assault and commented that the colors clashed. It was difficult to keep from laughing, but we agreed he could wear anything he liked, as long as he played as well as he did.
I'll post more on my visit on my next posting.

Mayo - The results


So I met with the Good Doctor O, and I also did the Mayo cardio gauntlet. You have to train for this like a marathon - 6-8 tests in 7 hours (lost count) in the glass Hab-i-trail that is the Mayo Clinic.

So I'm down 20 lbs from my Myectomy in 08, I've also shrunk in height. Stats on Echo look excellent. Echo took 1 hour & 20 min. Another 30 to verify results. (they run less than a half hour at Cedars Sinai in LA). They now look at Strain, which is a new thing for us HCM'r. Not sure if this is new at other centers, but its the first time I saw it. They take a measurement of the heart muscle (inside & ext diameter) then model the thickness. Then they document the muscle as it flexes during the pump. They then measure selected areas and record how this area (vertical & horizontal) flexes. Now that they have a base map of these sections they can compare how these areas do over time. If the flexes less, there is more thickening and scar tissue. Dr. Ommen explained that they can actually see minute HCM traits before they become more apparent with traditional echo - but they need a baseline to begin with. Again, Its the reason to come to a research center for cutting-edge care.

I also did the exercise test and didn't do as well as I'd have liked. Couple of issues affected it. I have a horrible cold, a bad knee, and a paralyzed diaphragm. That coupled with beta blockers, and ICD and I performed at about 75% of normal non-HCM guy my age. So I got the usual lecture on Cholesterol (I'm normal - but my LDL is elevated), Need to lose more weight (no surprise), and need to get back in the gym (since my syncope in Aug I've not gone).

Good news - No surgery ! The Watchman device is overkill. Not an issue with me since my last documented Afib run in '08 and we're going to go off beta blockers slowly & see how I do. I'm currently on 150 a day (75 am, 50 pm) and were going to just 75 a day for 3 weeks and see, if things go well, then down to 25 and wait again. So now that I know if safe for me to go, I'm going back to the gym, Going to lose another 20 & get off those BB & see if I can do any better on my next visit. Its good to have goals.

There's a prince visiting and the place was abuzz, and this one tech, with the sweetest mid-western twang said to me when I commented on him - "Ya know, he's treated no differently than you, we just accommodate his security entourage - thats it, your just as special to us, don't ya know"

I needed that on this birthday!

Saturday, September 4, 2010

Another device in me

http://www.atritech.net/animation.html

So I'm told I'm a candidate for a matchman device. This is suppose to reduce my risk of stroke to that of a "normal" person. Stroke is a very scary thing. Yeah, people make fun of it (me included), but seeing my mother with her entire left side paralyzed and watching her live the last 10 years of her life in nursing home makes me want to do everything in my power to prevent this. They want me on blood thinning meds, but I didn't like them. I'm already a slow clotter, and I've have cuts bleed for DAYS on these meds. I'm meeting my doctors at the Mayo in October to review if this is appropriate.

Get Away - Vegas!



# 2 is t
urning 21 in October. Thought I'd take him & his friend to Vegas to celebrate. I'm not drinking & I have no idea his abilities so this should be odd. I'll likely do my usual and wake up early, and be in charge of reserving chairs pool-side.
Got a great rate of $49. a night (Weekend!)
Now the tiny tiny print says this is good, one offer per person. So I booked one king in my name, and one double in #2's name. Let's see if this really does come true.

Monday, August 2, 2010

Passed out




Was at a lovely work-related rooftop event. Had a big mojito (and a coke, and water) and afterwards - I passed out. Now I have a shiny new shiner and a reputation! Not sure whats is up with this. I’ve made an appt. with Mayo in Oct. for my 2 yr review a week ago as I’ve not been feeliing chipper of Late.

My doctor wants to rule out electrical issues so tonight I download my device & tomorrow we talk. He was very concerned as I don't remember anything from the event - NADA - this is a sign of a concussion and a bit hard for me to take, but considering this black eye & red eyeball its very likely.

Somehow I made it to the train station from the event (I have no idea how), found the right train & and again passed out (i think). I awoke at the end of the line (5 stops passed my stop) at 10:30 at night. Train must have been sitting there for at least an hour. I had to take a cab to my station to get my car! Felt fine, but a bit dingy and $55.00 lighter.



For my co-workers who don't know of my HCM, I blamed low blood pressure, lack of food & and a really strong mojito. I was a bit shocked that someone from my work didn't follow up, but I really must have appeared OK But I have no idea & to ask makes me look like a real idot.